Challenge Accepted!

You know that feeling, that feeling like you are struggling and screaming for help under water. Sometimes that feeling feels constant for me. Every day brings some level of struggle. Some days it’s just that…

One of the big balancing acts of being a special needs parent is budget. Everything costs a lot and for William, he needs a lot. From airvo supplies and feeding tube supplies, to all the…

Finding a day that works for a trip to Vancouver is only the first hurdle. Trying to align the day, appointment time, ferries, siblings’ schedules, Bear’s work schedule and staff schedule, isn’t simple and for…

With a child graduating this year, I overhear many conversations about parents becoming empty nesters. These conversations start with a sad, reminiscing tone but usually end with all the things they plan to do to…

So, this may end up being less about the wheelchair and more about me momentarily losing my mind when chaos ensues. William spends a large amount of time in his wheelchairs. He has a manual-chair…

I can’t really think of a time where William was limited purely by his wheelchair. As a family we have had many times where he was limited by his health, but it was our decision…

It goes without saying that my kids and Bear are the most important people in my life. However, my parents are also the most important people in my life. My kids call them Mamie and…

Years ago, a friend of mine told me to actually block off ‘blank space’ time in my calendar. This blank space is an opportunity for our family to do whatever we feel like doing. This…

I’ve mentioned in the past that Bear and I make every effort to allow our girls to just enjoy William as their little brother. We try very hard not to put any of the heavy…

For William, his social interactions are primarily with therapists, his care team and our family. Occasionally, the girls will have friends over and he gets that little bit of interaction but it’s hard to find…

As the school year comes to an end, my sights shift to the crazy schedule of summer. William’s schedule basically stays the same but blending it with the schedules of everyone else in our home…

When people see William or meet our family there is always one question that quickly follows. Actually, it often comes out as a statement. “How do you do it all?” or “I don’t know how…

There has been a lot of chatter in our household lately as the school year comes to an end. My oldest, Mimi Pie is finishing up grade 11. She’s been very diligent with her studies…

I have written two blogs leading up to this day. The process began with the initial consultation and was followed by months of planning and advocating for the procedure and this day to happen. You…

This is a follow up blog to #32 – Nerve Freezing. After that initial consultation appointment, the actual procedure needed to be scheduled and planned. During that initial consultation I was very clear about William’s…

Nerve Freezing…also known as Cryoneurotomy Going to appointments has become second nature to me. I’m used to all the questions, I go in prepared with my own questions and William handles it all pretty well…

Our Current Team In my last blog I touched on hiring and saying goodbye and what that process looks and feels like. But the daily emotions of gratitude, acceptance, love, overwhelm (in a good way),…

Our team is one of the most important aspects of our family’s life. I’ve written about our team before but there have been some changes so I thought it was time to share a bit…