Challenge Accepted!

Our team is one of the most important aspects of our family’s life. I’ve written about our team before but there have been some changes so I thought it was time to share a bit…

Bear and I will be the first to admit that running our world requires help. In order to function we rely on our five care staff for William but beyond that there is a team…

Before William was born, we lost our daughter Hanna and were told that couples who experience the loss of a child often struggle to stay together. Then William was born and we were faced with…

Routine is big in our world because William relies on it. Medication administration, meals, sleep, down time, school time, physio time, pool time and standing frame time along with appointments and normal home duties are…

William has used an eye gaze since he was about 5 years old. Speech therapy itself started when William was very young. We used sign language, we read books, we were always talking to him,…

William’s world is all-consuming. For 11 years it’s basically been my full-time gig. Actually, I think it will always be my full-time gig but I’m realizing that I can have other things in my life…

This 4 letter word has more power than I’d like to admit.  It rules our world! William’s tone is relentless. It fluctuates from hour to hour despite medications and well-planned routines. Everything impacts his tone…

William is smart! Kernicterus impacts the part of the brain called the Basal Ganglia which mostly impacts movement. We have always been told that his intellect is likely intact. His learning is delayed because he…

Life has been crazy. I’ve wrestled with sharing my personal story publicly, I question peoples’ interest in my story, my time has been scarce and I’ve been trying to meet the demands of parenthood and…

After finding out that the van we had ordered likely wasn’t coming quickly, if at all, we went on a hunt for yet another option. It was a Friday when I was told and that…

As I was waiting on my delayed flight home from Toronto, I was feeling very excited to get home to see my kids. While boarding the plane, I recognized a gentleman from our community. We…

Travel is something that currently doesn’t really exist for William, but it does exist for the rest of us. We don’t travel a lot and I wouldn’t call our travel “vacation.” Our travel is limited…

Lately things have been a rollercoaster. I find myself inspired to write but I find myself second guessing the realities of the content. I look into my little boy’s eyes and my heart aches for…

It would be very easy for me to focus on all the daily hurdles that exist in my world of parenting a boy with exceptionalities. There are so many triggering events every single day that…

Over the years self care has evolved, changed, shifted and been non-existent. Self care has often felt selfish, exhausting, overwhelming but now…it feels sacred. No matter where I am at with self care, it is…

I have had many dear friends through the different seasons of my life and I’m acutely aware that in my current season, it takes a warrior to stand by my side. Despite my recent decision…

In the early years on our farm we adopted some goats and a livestock guardian dog, Rosie, to protect them and our girls. This was a huge learning curve for us city slickers. Rosie is…

After months of appointments, fittings and trials, William’s hearing aids had arrived. We booked the final appointment to head down to Victoria to have them set just right for him. We didn’t get anything particularly…